Meet H&M Role Model
A V E R Y J O Y
THIS RARE BIRD IS A DANCING QUEEN
Avery Joy and her Mama, Abbey, tirelessly advocate for the inclusion of children with disabilities. That's why even though she uses a wheelchair, Avery Joy gets on stage and dances her heart out. She reminds us that we can find joy and belonging, no matter the differences we see on the outside.
Avery, Abbey, and their friends at Rare Birds Foundation are searching for treatments that can slow the progression of Avery's rare disorder, ADSL Deficiency, which is life-limiting and currently has no treatment or cure.
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Please follow the link below to donate to research that will lead us to a treatment and keep Avery Joy dancing for years to come!
Shop Abbey's collection of books for children teaching inclusion and disability acceptance!
About Rare Birds Foundation
for ADSLD
Rare Birds Foundation came together in 2023 to serve patients and families affected by ADSL Deficiency Disorder, a rare genetic disorder of purine metabolism.
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Our Mission:
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Find Treatment Options
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Find a Cure
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Support Families Affected by ADSLD
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Raise Awareness and Increase Access to Testing
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