top of page

About Rare Birds Foundation

for ADSLD

Rare Birds Foundation came together in 2023 to serve patients and families affected by ADSLD (Adenylosuccinate Lyase Deficiency Disorder), a genetic disorder of purine metabolism. 

​

Our Mission:

  • Find Treatment Options

  • Find a Cure

  • Support Families Affected by ADSLD

  • Raise Awareness and Increase Access to Testing

​

Follow us on our Socials​

  • Facebook
  • Instagram
  • LinkedIn
A white family of 4, the two children are disabled and father and daughter are laughing at each other

FIND OUT MORE

Togetherness

NEWLY DIAGNOSED?

You are not alone. 

Find ways to connect with your community and be 'rare together'. 

DNA

RESEARCH

There are teams around the globe doing research on this rare disorder. 

Donation Jar

SUPPORT US

Our all-volunteer organization needs your support. 

WHERE WE ARE

©2025 by Rare Birds Foundation. 

Disclosure:

This site is intended to provide basic educational information about Adenylosuccinate Lyase Deficiency Disorder (ADSLD). It is not intended to, nor does it, constitute medical or other advice. Readers are warned not to take any action regarding medical treatment or otherwise based on the information on this website without first consulting a physician.

 

The information contained in this site is intended for your general education and information only and not for use in pursuing any treatment or course of action. Ultimately, the course of action in treating a given patient must be individualized after a thorough discussion with the patient’s physician(s).

bottom of page